Listed below are links to other cancer resources on the Internet that have information about malignant mesothelioma.
University of Pennsylvania’s Oncolink
American Society for Clinical Oncology’s Patient Site
Intelihealth – www.intelihealth.com
American Institute for Cancer Research
American Thoracic Society – www.thoracic.org
Canadian Cancer Society – www.cancer.ca
Lung Cancer Foundation of America
Malignant Mesothelioma – at Mesothelioma Aid
Evaluating medical information on the internet.
Sometimes people with serious illnesses would like to speak with others in the same situation. The following organizations attempt to match people with similar situations looking for mutual support.
Anderson Network (cancer)
Phone : 1-800-345-6324 (Toll Free)
Website: www.mdanderson.org/
The Anderson Network, part of The University of Texas M. D. Anderson Center in Houston has a database of more than 1300 current and former cancer patients.
Cancer Hope Network (cancer)
Phone: 1-877-HOPENET (Toll Free)
Website: www.cancerhopenetwork.org
Cancer Hope Network has a database of 325 patients representing 45 cancers.
Med Help Int’l Patient Network (all illnesses)
www.medhelp.org
Cancer Buddies Network
www.cancerbuddiesnetwork.org
An online charity based support group designed to put you in touch with a cancer buddy so you can share the ups and downs, laughter and tears with someone who knows how it feels. Includes a lively forum.
Madeleine Philippe Cancer Foundation
www.mpcfaus.org
Starlight Children’s Foundation
www.starlight.org
Helping seriously ill children and their families cope.
Books
Libby, Montana: Asbestos and the Deadly Silence of an American Corporation by Andrea Peacock
Fatal Deception: How Big Business is Still Killing Us with Asbestos
by Michael Bowker – This book should be of interest to anyone affected by an asbestos-related illness. It chronicles the fight for justice in Libby, Montana, site of the most lethal environmental disaster in U.S. history. It tells in great detail of the callous disregard of the W. R. Grace Company, both for the protection of its workers (and literally, the town of Libby), from the deadly effects of asbestos fibers, and in the far-reaching coverup that followed. Also mentioned, are concerns about a possible coverup by the EPA and the government at the site of the World Trade Center in New York, and the fact that asbestos is still an ingredient in thousands of products in the U.S. – one of the few nations that has still not placed a ban on its use.
‘Lean on Me’ Cancer through a Carer’s Eyes by Lorraine Kember. Written by the wife of a mesothelioma patient, this book combines both the physical and emotional impact of caring for a loved one with mesothelioma. Highly recommended by Cancer Councils and Palliative Care Organizations world wide, this inspirational true story includes insight and discussion on pain management, symptom control and coping with grief along with many excerpts and poems from Lorraine’s personal diary. These deeply personal and emotive pieces offer an insight into “anticipatory grief” and the roller coaster of emotions we experience upon the terminal diagnosis of a loved one.
White Dust Black Death: The Tragedy of Asbestos Mining at Baryulgil by Peter Webster. Part of a story of the Baryulgil Asbestos Mine and its disastrous effects upon Bundjalung People and others.
